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The objectives of this article are to (1) provide an overview of existing spinal cord injury (SCI) clinical research databases—their purposes, characteristics, and accessibility to users; and (2) present a vision for future collaborations requir[...]Article
Kimberley R. Monden ; Jennifer Coker ; Susan Charlifue ; Stephanie J. Bennett ; Christina Draganich ; David Coons ; Ralph J. Marino ; Jeffrey Berliner |Objective To explore participants’ experiences after implantation of a diaphragmatic pacing system (DPS). Design Cross-sectional, observational study using self-report questionnaires. Setting Participants were recruited from 6 Spinal Co[...]Article
Jesse L. Kowalski ; Nguyen Nguyen ; Ricardo A. Battaglino ; Scott P. Falci ; Susan Charlifue ; Leslie R. Morse |Objective To identify microRNA biomarkers and clinical factors associated with neuropathic pain after spinal cord injury. Design Cross-sectional, secondary analysis of baseline data collected from ongoing clinical studies. Using a genome-wi[...]Article
David S. Tulsky ; Aaron J. Boulton ; Pamela A. Kisala ; Allen W. Heinemann ; Susan Charlifue ; Claire Z. Kalpakjian ; Allan J. Kozlowski ; Elizabeth R. Felix ; Denise C. Fyffe ; Mary D. Slavin ; Denise G. Tate |Objective To explore trajectories of functional recovery that occur during the first 2 years after spinal cord injury (SCI). Design Observational cohort study. Setting Eight SCI Model System sites. Participants A total of 479 adul[...]Article
Mauricio Garnier-Villarreal ; Daniel Pinto ; Chaithanya Krishna Mummidisetty ; Arun Jayaraman ; Candy Tefertiller ; Susan Charlifue ; Heather B. Taylor ; Shuo-Hsiu Chang ; Nicholas McCombs ; Catherine L. Furbish ; Edelle C. Field-Fote ; Allen W. Heinemann |Objective To characterize individuals with spinal cord injuries (SCI) who use outpatient physical therapy or community wellness services for locomotor training and predict the duration of services, controlling for demographic, injury, quality o[...]Article
Elizabeth R. Felix ; Diana D. Cardenas ; Thomas N. Bryce ; Susan Charlifue ; Tae Kyong Lee ; Bria MacIntyre ; Sara Mulroy ; Heather Taylor |Objective To compare prevalence, intensity ratings, and interference ratings of neuropathic pain (NeuP) and nociceptive pain in people with chronic spinal cord injury (SCI) Design Cross-sectional survey. Setting Six SCI Model System cen[...]Article
Marcel W.M. Post ; Carolina S. Fellinghauer ; Susan Charlifue ; Peter W. New ; Martin B. Forchheimer ; Denise G. Tate |Objective To examine the internal construct validity of the International Spinal Cord Injury Quality of Life Basic Data Set Version 2.0 (QoL-BDS V2.0) and compare this with the internal construct validity of the original version of the QoL-BDS.[...]Article
Pamela A. Kisala ; Aaron J. Boulton ; Mary D. Slavin ; Matthew L. Cohen ; Tamra Keeney ; Pengsheng Ni ; Denise G. Tate ; Allen W. Heinemann ; Susan Charlifue ; Denise C. Fyffe ; Elizabeth R. Felix ; Alan M. Jette ; David S. Tulsky |Objective To establish responsiveness of 3 Spinal Cord Injury–Functional Index/Capacity (SCI-FI/C) item banks in the first year after spinal cord injury (SCI). Design Longitudinal patient-reported outcomes assessment replicated through se[...]Article
Objective To examine the role of residential neighborhood characteristics in accounting for race disparities in participation among a large sample of community-living adults with chronic spinal cord injury (SCI). Design Secondary analysis of c[...]Article
Jennifer Coker ; Jeffrey C. Berliner ; Amanda Botticello ; Thomas N. Bryce ; Susan Charlifue ; David Chen ; David Estrada ; Kimberley R. Monden ; Heather Taylor ; Ross Zafonte ; Jeanne M. Zanca |Objective To characterize the use of complementary and integrative health care (CIH) by people with spinal cord injury. Design Cross-sectional self-report study. Setting Participants were recruited from 5 Spinal Cord Injury Model System[...]Article
Christina Draganich ; Andrew Park ; Mitch Sevigny ; Susan Charlifue ; David Coons ; Michael Makley ; Raul Alvarez ; James Fenton ; Jeffrey Berliner |Objective To determine the incidence of VTE in the population with brain injuries (BIs) using ultrasonography, and to assess the risk of pulmonary embolism (PE) development and/or bleeding complications related to anticoagulation. Design Retrosp[...]
