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Pamela A. Kisala ; David Victorson ; Ratna Nandakumar ; Andrew Shermeyer ; Denise C. Fyffe ; Allen W. Heinemann ; Trevor A. Dyson-Hudson ; David S. Tulsky |Objectives To develop clinically relevant interpretive standards for the Spinal Cord Injury–Functional Index/Capacity (SCI-FI/C) Basic Mobility and Self-Care item bank scores. Design Modified “bookmarking” standard-setting methodology, in[...]Article
Objective To develop and evaluate the psychometric properties of an item set measuring economic quality of life (QOL) for use by individuals with disabilities. Design Survey. Setting Community settings. Participants Individuals with disabili[...]Article
Objective To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item ban[...]Article
Objective To develop an item response theory (IRT)-calibrated, patient-reported outcome measure of subjective independence for individuals with traumatic brain injury (TBI). Design Large-scale item calibration field testing; confirmatory [...]Article
Objectives To develop functional ability levels for the Spinal Cord Injury Functional Index (SCI-FI) and to validate them using calibration and reliability samples. Design Three-phase strategy involved (1) performing quantitative synthesis of [...]Article
David S. Tulsky ; Pamela A. Kisala ; Callie E. Tyner ; Jerry Slotkin ; Christina Kaufman ; Christopher L. Dearth ; Annamarie D. Horan ; Simon G. Talbot ; Jaimie T. Shores ; Kodi Azari ; Curtis Cetrulo ; Gerald Brandacher ; Carisa M. Cooney ; David Victorson ; Mary Dooley ; L. Scott Levin ; CDR Scott M. Tintle |Objective To identify the most important health-related quality of life (HRQOL) domains and patient-reported outcomes after upper extremity transplantation (UET) in individuals with upper extremity amputation. Design Verbatim audio-recordings of[...]Article
Objective To link 3 Spinal Cord Injury–Functional Index (SCI-FI) item banks (Basic Mobility, Fine Motor Function, Self-Care) to the Patient-Reported Outcome Measurement Information System (PROMIS) Physical Function (PF) metric. Design Obs[...]Article
Objective To develop a pain interference item bank, computer adaptive test (CAT), and short form for use by individuals with traumatic brain injury (TBI). Design Cross-sectional survey study. Setting Five TBI Model Systems rehabilitat[...]Article
The Spinal Cord Injury–Functional Index (SCI-FI) is a system of patient-reported outcome measures of functional activities developed specifically with and for individuals with spinal cord injury (SCI). The SCI-FI was designed to overcome limitat[...]Article
David S. Tulsky ; Aaron J. Boulton ; Pamela A. Kisala ; Allen W. Heinemann ; Susan Charlifue ; Claire Z. Kalpakjian ; Allan J. Kozlowski ; Elizabeth R. Felix ; Denise C. Fyffe ; Mary D. Slavin ; Denise G. Tate |Objective To explore trajectories of functional recovery that occur during the first 2 years after spinal cord injury (SCI). Design Observational cohort study. Setting Eight SCI Model System sites. Participants A total of 479 adul[...]Article
Objective To assess the responsiveness of the Traumatic Brain Injury–Quality of Life (TBI-QOL) measurement system. Design Participants completed the 20 TBI-QOL item banks and the Participation Assessment with Recombined Tools–Objective (P[...]Article
Pamela A. Kisala ; Aaron J. Boulton ; Mary D. Slavin ; Matthew L. Cohen ; Tamra Keeney ; Pengsheng Ni ; Denise G. Tate ; Allen W. Heinemann ; Susan Charlifue ; Denise C. Fyffe ; Elizabeth R. Felix ; Alan M. Jette ; David S. Tulsky |Objective To establish responsiveness of 3 Spinal Cord Injury–Functional Index/Capacity (SCI-FI/C) item banks in the first year after spinal cord injury (SCI). Design Longitudinal patient-reported outcomes assessment replicated through se[...]Article
Callie E. Tyner ; Pamela A. Kisala ; Allen W. Heinemann ; Denise C. Fyffe ; Denise G. Tate ; Mary D. Slavin ; Alan M. Jette ; David S. Tulsky |Objective To evaluate the psychometric properties of the Spinal Cord Injury–Functional Index (SCI-FI) instruments in a community-dwelling sample. Design Cross-sectional study. Setting Community setting. Participants Individuals (N[...]
