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Matthew L. Cohen, Auteur ; Alyssa M. Lanzi, Auteur ; Aaron J. Boulton, Auteur |Patient-reported outcome measures (PROMs) assess health outcomes from the patient's perspective. The National Institutes of Health has invested in the creation of numerous PROMs that comprise the PROMIS, Neuro-QoL, and TBI-QoL measurement system[...]Article
Objective To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item ban[...]Article
Objective To develop a set of composite scores that can be used for interpreting quality of life (QOL) after traumatic brain injury (TBI) using 9 of the patient-reported outcomes measures from the Traumatic Brain Injury Quality of Life (TBI-Q[...]Article
Objective To develop an item response theory (IRT)-calibrated, patient-reported outcome measure of subjective independence for individuals with traumatic brain injury (TBI). Design Large-scale item calibration field testing; confirmatory [...]Article
Objective To link 3 Spinal Cord Injury–Functional Index (SCI-FI) item banks (Basic Mobility, Fine Motor Function, Self-Care) to the Patient-Reported Outcome Measurement Information System (PROMIS) Physical Function (PF) metric. Design Obs[...]Article
Objective To develop a pain interference item bank, computer adaptive test (CAT), and short form for use by individuals with traumatic brain injury (TBI). Design Cross-sectional survey study. Setting Five TBI Model Systems rehabilitat[...]Article
David S. Tulsky ; Aaron J. Boulton ; Pamela A. Kisala ; Allen W. Heinemann ; Susan Charlifue ; Claire Z. Kalpakjian ; Allan J. Kozlowski ; Elizabeth R. Felix ; Denise C. Fyffe ; Mary D. Slavin ; Denise G. Tate |Objective To explore trajectories of functional recovery that occur during the first 2 years after spinal cord injury (SCI). Design Observational cohort study. Setting Eight SCI Model System sites. Participants A total of 479 adul[...]Article
Pamela A. Kisala ; Aaron J. Boulton ; Mary D. Slavin ; Matthew L. Cohen ; Tamra Keeney ; Pengsheng Ni ; Denise G. Tate ; Allen W. Heinemann ; Susan Charlifue ; Denise C. Fyffe ; Elizabeth R. Felix ; Alan M. Jette ; David S. Tulsky |Objective To establish responsiveness of 3 Spinal Cord Injury–Functional Index/Capacity (SCI-FI/C) item banks in the first year after spinal cord injury (SCI). Design Longitudinal patient-reported outcomes assessment replicated through se[...]
